Save the soul of my son " Mohammed" who struggles with the deadly (Spinal Muscular Atrophy) disease SMA Type1, the cure is available but very expensive.

The cure for this disease is now available but out of my reach as it cost 2.1 Million USD and it is not included in the insurance care in Jordan, the only hope to me is your donations.

Very recently Novartis International AG has developed a new treatment for this disease under the name of (Zolgensma), which was approved internationally by the FDA on May 24th, 2019 just a few days ago.


I am Abdullah Jamal Al Azzam a Jordanian Citizen,I lost my daughter "Bilsan" in 2/2/2019 after she struggled with (Spinal Muscular Atrophy) SMA type1 disease for two and a half years, which is a deadly and rare disease in the world.

This disease leads to a general atrophy in the muscles of the body leading to difficulty in breathing, swallowing, movement and ends with death, and it did not just stop there.

My second son" Mohammed" is now diagnosed with the same disease. I applied for abroad treatments through the Ministry of Health in Jordan, but the response was rejected because the treatment was not included in the list of International treatments, in addition, the cost was very high. We applied to seek assistance through the Jordanian Royal Court, which refused to accept my application since my child is insured by Jordan’s Ministry of Health Insurance.


I have reached to a dead end and hopelessness along with fear of losing another child while I watch my son suffering constantly on a daily basis.

I would like to express my voice and seek help from you to provide the proper treatment or donations to pay for the treatment and buy some equepments that helpe mohammed to be good, on the other hand I want to use these money to do any things lead to save my son life , and this is why I am asking for help.



Please note that when anyone create campaign in "gofundme" website he must achieve four requirement:
USA SSN,address in one of the 50 USA states,personal phone number in USA and personal bank account in USA.
since i dont have these requirments to get the fund.

so my close friend "yasser moustafa" who lives in USA going to help me get the fund.